Hashimoto’s Thyroiditis Support Group
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January 22, 2018, 01:03:30 PM
586 Posts in 114 Topics by 20184 Members
Latest Member: amannafrellax
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1  General Category / Discussion Board (ATTN: Board closed for posting) PLEASE COME TO OUR NEW FACEBOOK SUPPORT GROUP YOU CAN FIND ON THE FRONT PAGE OF MY BLOG - SEE YOU THERE!) / Please see our new Facebook page to get support and help others too! on: April 08, 2013, 10:21:45 AM
Please go here to sign into Facebook and "like" the page for a community of other Hashimoto's Disease sufferers:

https://www.facebook.com/Hashimotos.Thyroiditis.Support

See you there!

Mo (Maureen)
2  General Category / GLUTEN FREE (Attention: Board closed for posting) Go to my Facebook page for our NEW support group community! :) / Please go to our new Facebook page to post and get support! on: April 08, 2013, 10:19:32 AM
Please go here to sign into Facebook and "like" the page for a community of other Hashimoto's Disease sufferers:

https://www.facebook.com/Hashimotos.Thyroiditis.Support

See you there!

Mo (Maureen)
3  General Category / GLUTEN FREE (Attention: Board closed for posting) Go to my Facebook page for our NEW support group community! :) / Have you gone gluten free? on: July 05, 2011, 02:52:15 PM
I am really thinking that gluten free is not all there is to getting well. Smiley Actually, I know I am not alone. However, when I went grain free, gluten free, sugar free, and everything "free", my antibodies soared down into the lowest zone I had every witnessed since my diagnoses. (172) Up til that point, it was common for me to see far into the thousands on a regular basis.

So, will we become anti-grain? I have other ideas on this one but I will wait for another blog post. Smiley

Just wondering what your experience with gluten free has been and has it lead to you also eliminating other foods?

Mo Smiley
4  General Category / GLUTEN FREE (Attention: Board closed for posting) Go to my Facebook page for our NEW support group community! :) / Re: Talk about and ask questions about the gluten free journey! on: July 05, 2011, 02:44:43 PM
HI Deb,

Thanks for the links. I really like the second one. Boy, that person really hates grains. LOL

Mo Smiley
5  General Category / GLUTEN FREE (Attention: Board closed for posting) Go to my Facebook page for our NEW support group community! :) / Re: Talk about and ask questions about the gluten free journey! on: July 05, 2011, 02:39:48 PM
Hi Olsolo0,

As far as I know, the test for Celiac is not the same as the gluten sensitivity tests. The way I understand it, is that Celiac normally has to be full blown (severe destruction happening to the intestines) for it to be positive. So, anything leading up to that destruction could be unrealized until it is in the most severe state. Also, the antibodies for Celiac are different than those to other parts of the body so I would think you would need to take a more comprehensive gluten sensitivity test.

Mine was done through EnteroLab http://www.enterolab.com/StaticPages/Faq.aspx

Hope this helps.

By the way, are you being alerted when you get responses to the forum? I want to be sure it is running correctly.

Thanks, Mo

6  General Category / GLUTEN FREE (Attention: Board closed for posting) Go to my Facebook page for our NEW support group community! :) / Talk about and ask questions about the gluten free journey! on: June 18, 2011, 01:40:30 PM
I'd like to make this section available for those who are just starting or have questions about the gluten free lifestyle as well as being able to just support each other though it.

Mo Smiley
7  General Category / Discussion Board (ATTN: Board closed for posting) PLEASE COME TO OUR NEW FACEBOOK SUPPORT GROUP YOU CAN FIND ON THE FRONT PAGE OF MY BLOG - SEE YOU THERE!) / Re: Intestinal Issues and Hashimoto's on: May 14, 2011, 07:24:44 PM
That's GREAT Lauren!

I am finding that although gluten is the most common sensitivity associated with Hashimoto's, soy is really close behind. In fact, other sensitivities are essential to figure out I think to feel better.

So glad you stuck with it and found the culprit!

Thank you for sharing!

Mo Smiley
8  General Category / Discussion Board (ATTN: Board closed for posting) PLEASE COME TO OUR NEW FACEBOOK SUPPORT GROUP YOU CAN FIND ON THE FRONT PAGE OF MY BLOG - SEE YOU THERE!) / Re: I need some advice on: April 25, 2011, 09:30:22 PM
And one day at a time is the best way to go!

Looking forward to hearing good news!

Thanks for the update!

Mo Smiley
9  General Category / Discussion Board (ATTN: Board closed for posting) PLEASE COME TO OUR NEW FACEBOOK SUPPORT GROUP YOU CAN FIND ON THE FRONT PAGE OF MY BLOG - SEE YOU THERE!) / Re: I need some advice on: April 20, 2011, 10:01:33 AM
Hi Thea,

Let us know how it is going. It is amazing how there is no way anyone can monitor your body except you! Good job on trying to figure things out.

Would love to know how the Synthroid is doing but in the end, I know the real culprit is an immune system issue. I agree with the doctor that their are two important areas to work on when it comes to Hashi's. One are the meds which represent dealing with the current issues but will never solve the problem, and the second is the immune system which CAN affect the root issues.

Would love to hear how you are doing.

Mo Smiley
10  General Category / Discussion Board (ATTN: Board closed for posting) PLEASE COME TO OUR NEW FACEBOOK SUPPORT GROUP YOU CAN FIND ON THE FRONT PAGE OF MY BLOG - SEE YOU THERE!) / Re: New info-may be helpful on: April 01, 2011, 09:09:48 AM
Debbie,

Do you make your yogurt raw or with pasteurized milk? What method do you use? Do you sense you can tolerate dairy that is fermented (especially raw)?

I appreciated your comment about the distilled vs. fermentation. I never knew that. I am quite on the natural band wagon and don't use distilled vinegar but I've always wondered what made it so different. Thanks!

Very excited for you Deb on your weight loss and even more about the Paleo Diet with the NT twist. Sounds like something I might try again one day. If my antibodies go down to very little, I will be experimenting to see if the long soaked method will cause an autoimmune reaction. It will be VERY interesting to get that answer. But I have at least 3 months to go before I am ready to vary my diet like that as I still need 2 true gluten free months after a 20 day initial grain free and everything "free" (LOL) diet in order to get to the cross-reactive food test and THEN I should be able to test the soaked grains in my diet. I am hopeful we will find out that traditionally preparing our grains could hold the answer - at least for some.

It was great hearing of your journey. Keep us posted.

Mo Smiley
11  General Category / Discussion Board (ATTN: Board closed for posting) PLEASE COME TO OUR NEW FACEBOOK SUPPORT GROUP YOU CAN FIND ON THE FRONT PAGE OF MY BLOG - SEE YOU THERE!) / Re: New info-may be helpful on: March 30, 2011, 09:17:19 AM
I could be "mis-naming" the diet I am going on. It is a diet that targets staying away from any and all foods that are KNOWN to have allergic properties to the overall population. Basically, it's a 10-20 Paleo Diet in which you stay away from all soy, grains, sugar, preservatives, dairy, even beans, white potatoes (low glycemic foods only). So, I am going to be doing this for about 20 days. This will give my gut time to heal from whatever is affecting it and in the meantime, I will be taking some supplements to help with probiotics, and intestinal lining support. Also, fish oil to help with the anti-inflammatory aspect of healing. Really it's a bunch of low glycemic veggies and good sources of meat (grass fed wild beef, free range chicken and good sources of wild fish). This is temporarily to prepare the diet for a TRUE gluten free diet.

Minnypurl - if you are sure you have no been cross-contaminating (not on purpose but inadvertently getting cross-contaminated by restaurants or your kitchen products/counter) then you might want to be sure you have covered checking foods like chocolate, rice, cheese, etc. There are specific foods (as described in the podcast I posted) that are known to have shown up as cross-reactive foods (meaning the gut marks them like it does gluten) in other people. That test is great due to the research behind it and the specifically targeted foods it has on the list. Also, I imagine you have check all your condiments and personal products such as toothpaste?

don't give up - for the range of $200.00 for a consult, the doctor I go to can check your testing so far and see if you are missing a component geared towards calming the immune system. He can look over all your previous testing and recommend anything that has been missed.

For Celiac, certain testing is no longer adequate. I am wondering what they did to test you.

Here's a good vid on that issue:

http://www.youtube.com/watch?v=Fjh9oqcuyvI

Let me know if that helps.

Hope you get down to the bottom of things soon. Hang in there.

Mo Smiley


12  General Category / Discussion Board (ATTN: Board closed for posting) PLEASE COME TO OUR NEW FACEBOOK SUPPORT GROUP YOU CAN FIND ON THE FRONT PAGE OF MY BLOG - SEE YOU THERE!) / Re: Eventually gave into homeopathy on: March 27, 2011, 09:54:39 AM
This is true.... a TSH of 3.8 unfortunately is not what most of us felt "good" at. Most doctors now realize that the lab markers are still off on the normal range and 1-2 is usually the place we feel best. But if a person feels great at 3+, that is what turns out to matter most. Smiley

Keep us posted Alon and thanks for letting us know your name. If possible, signing your name (and this applies to all of us) makes it easier for everyone to easily address you when they respond.

Take care,

Mo
13  General Category / Discussion Board (ATTN: Board closed for posting) PLEASE COME TO OUR NEW FACEBOOK SUPPORT GROUP YOU CAN FIND ON THE FRONT PAGE OF MY BLOG - SEE YOU THERE!) / Re: Muscle twitching? on: March 27, 2011, 09:50:10 AM
Hi Lori,

Janet gives some great advice, as always. I would also like to add that if you felt great on the GF diet, you are likely onto something good. Have you listened to the audio I posted recently on my blog? In case you didn't, here it is:

http://www.thedr.com/images/uw11011.mp3

I think that will motivate you not to cheat. Smiley

Also, I take about 10,000 IU's per day but I am being monitored by my doctor. I started out at about 16.8 and after about 5 months I am up to 55.2 - yay! I am pretty much in the range now but will continue to raise it a bit I think as my doc wants me to stay on the current dosage.

If anyone wants a long distance doctor, I highly recommend mine. He can do everything over the phone unless you are close enough for a face-to-face visit. Here's his info again:

http://www.drboydston.com/thyroid.html

Hope this answered your question.

Take care,
Mo Smiley
14  General Category / Discussion Board (ATTN: Board closed for posting) PLEASE COME TO OUR NEW FACEBOOK SUPPORT GROUP YOU CAN FIND ON THE FRONT PAGE OF MY BLOG - SEE YOU THERE!) / Re: New here and hoping for help/advice/info on: March 27, 2011, 09:39:11 AM
Hi Janet,

So happy to see you here! You are always so good as describing things! You are always on top of the latest too! Thank you!

I agree with your hunch on the cross-reactive foods and leaky gut.

How are you doing?

I am feeling much better about my journey lately as I have found a great doctor that is partnering with me!

Take care and come back often.

Mo Smiley
15  General Category / Discussion Board (ATTN: Board closed for posting) PLEASE COME TO OUR NEW FACEBOOK SUPPORT GROUP YOU CAN FIND ON THE FRONT PAGE OF MY BLOG - SEE YOU THERE!) / Re: New info-may be helpful on: March 27, 2011, 09:35:43 AM
Hello Minnypurl,

Thank you for your comment.

I have some questions for you. This is very interesting and together we might be able to come up with some answers.

I also did a similar "run" with diet. Gluten free (I thought - I wasn't as knowledgable as you were during your GF diet), sugar free, preservative free, soy free (except for some good fermented soy).

So, I have concluded based on my recent journey with my new doctor, that I was likely eating cross-contaminated foods (for one) and more importantly, cross-REACTIVE foods that I was unaware of. Examples of this COULD be corn, and other processed grains or even things as simple as Quinoa or any number of foods that my body mistook for an invader. Coming up in the next couple weeks, I am, with the supervision of my doctor, doing a cleansing diet recommended by Dr. K's protocol for about 20 days, then proceed to a simple "gluten free" but strict gluten free diet.

Then, after 2 months, there is a new test that is out which can determined which common cross-reactive foods could be causing a problem.  This research is moving fast (that is great news for us) and soon, many others may be able to benefit from those of us  attempting these protocols. I am optimistic of the outcome. So, I should know a lot more in about 3 months.

So, here's the questions I thought I'd ask:

1. Did you increase other grains during your gluten free diet? If so, what did you find yourself replacing gluten with?
2. Did you turn to processed GF foods?
3. Did you increase anything else that sticks out in your mind?

These answers might help in your quest in figuring out this "puzzle".

Maybe your doctor would be able to give you the new test for cross-reactive foods after going gluten free developed by a gluten specialist (Cyrex Laboratories).

A good audio on this is found here:

http://www.thedr.com/images/uw11011.mp3

Hope some of this helped.

Keep us posted.

Mo Smiley



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